My perspective on life has changed.
I don’t care about a lot of stuff I used to care about.
There are a lot of things in life that we waste brain power on that just don’t matter in the grand scheme of things.
That’s not an easy thing to do in hard times. But, that’s when you find out what you’re truly made of.
I intentionally look for things throughout my day for which to be grateful.
I thank God for the blessings He’s granted us through this journey and I also thank Him for the restoration that He promises to bring.
I thank God for so many precious, tender moments I’ve gotten to experience with my child that has truly shown me her heart.
I thank God for the dreams He’s allowing my oldest daughter to live out.
I thank God for such an amazing, selfless husband whom I can lean on day-in and day-out.
I thank God for the provision He’s granted us and for the provision that is still to come.
I thank God that knowing Him allows me to always be able to say, “everything will be ok.”
Unfortunately, we are back inpatient after only getting to be home for four days.
We had to take La Petite Belle into the emergency room last Tuesday afternoon due to multiple fainting spells. They became more and more frequent, accompanied with more and more vomiting. After 24 hours in the ER, two days in PICU, one day in PCU, we finally ended up back on the BMT floor Friday night. Many tests were run on our girl’s heart and brain. Turns out her “fainting” spells are a response to pain in her gut. La Petite Belle does not actually become unconscious, even though she looks that way. Her vitals stay stable, but she is limp, lifeless, and eyes rolled back. What she is doing is something called “vagaling.” It was described to us as her body’s way of “bearing down” as she’s about to experience some type of pain. The vagus nerve itself is actually directly responsible for digestion, moving food along through your stomach. Everything is starting to make sense now as today we got results of another test that was done called a “gastric emptying” test, which shows if her stomach is actually emptying the contents that are put in. The results came back and she has delayed gastric emptying or Gastroparesis. This is why just recently she has been vomiting more and is never hungry. She hasn’t been eating anything at all, actually. A new medicine will be started today which promotes stomach emptying and gut motility. We are praying that this will solve yet another stomach issue, which, in turn, will solve the “passing out.”
In being home just four days, we did notice her getting up more and getting stronger.
Pray with us that this new medicine does the trick and we can go back “home” to the apartment. Please continue to pray for her kidneys to return to fully functioning and her to get stronger each day.
An even more detailed prayer list is in the previous post.
I am grateful for all your prayers, for lifting up our family daily. We love you all.
If you would like to financially support Katie’s (aka La Petite Belle) journey to healing, you can find more information here: www.gofundme.com/Katieg. All funds go to cover medical bills and expenses.
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