by stillrising | Aug 26, 2016 | Daphne, Uncategorized
That was what one of the nurse managers told Beau and I a couple of days ago. “Don’t lose yourself.” That statement stuck with me. But, there’s no way not to lose ourselves in our current circumstance. When you have a child who is battling...
by stillrising | Aug 19, 2016 | Daphne, Uncategorized
You know what the definition of insanity is, right? Well … here you go … Insanity – Doing the same thing over and over again, expecting different results. At least that’s the only definition I know and it’s exactly the definition I gave...
by stillrising | Aug 11, 2016 | Daphne, Uncategorized
That happened two days ago. La Petite Belle ended up back in the ICU over the weekend due to another GI bleed. She seems to be stuck in the pattern of bleeding, healing, getting stronger, then, starting over with bleeding again. We have been in and out of the ICU four...
by stillrising | Aug 9, 2016 | Daphne, Uncategorized
That’s the word that La Petite Belle used to describe herself. It broke my heart, because all I see is beauty and strength when I look at her. She was chosen to carry the torch in the hospital’s celebration of the opening ceremony of the Olympics. When she...
by stillrising | Jul 27, 2016 | Daphne, Uncategorized
As I started writing this post yesterday, La Petite Belle had just finished asking, yet another nurse, what her “religion” was. She’s never been one to mince words. She asks people this when she starts to talk about the t-shirt she designed. She...
by stillrising | Jul 20, 2016 | Daphne, Uncategorized
Since I’ve last posted, La Petite Belle has been back to ICU twice. We’re currently there today. The last visit was short. We had gone back up to the BMT floor, and then less than 24 hours later, La Petite Belle had another GI bleed. This bleed seemed to...
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